Aims
Cancer is more common in older Australians. However, little is known about the cancer care experiences of older people. This study aimed to qualitatively explore the experiences and perceptions of older adults with cancer and caregivers on the impact of aging on treatment decision-making and their cancer care.
Methods
Self-identified older adults with cancer and caregivers completed a brief online survey and participated in a semi-structured telephone interview exploring their perceptions and experiences of treatment decision-making and cancer care. Thematic analysis using a framework approach identified key themes.
Results
Nineteen older adults with cancer and eight caregivers participated. Patient participants had a mean age of 74 years (range 66–90 years), most were diagnosed with blood (n=9) or breast (n=8) cancer, and had a mean time of 6 years since initial diagnosis. Majority of caregivers were female (n=7), providing care for their spouse/partner (n=5), with a mean age of 63 years (range 44–73 years). Thematic analysis identified three themes: 1) Intersectionality between cancer and aging: patient’s views on the impact of age and fitness in treatment decisions, and relationship between receiving a cancer diagnosis and referral to age-related (non-cancer) support, 2) Factors influencing treatment acceptance: trust in clinician and participants’ valuing survival and length of remaining life not just quality of life when making treatment decisions, and 3) Role of the caregiver, including their capacity to provide care.
Conclusion
This study provides insight into the impact of age on cancer care for older adults and questions the underlying assumptions we have when considering who an “older” adult is. This study also highlights the importance of support for caregivers, especially for older caregivers.