Introduction and aims: More than 8000 women are diagnosed with a gynaecological cancer in Australia and New Zealand each year[1],[2]. Gynaecological cancer survivors and caregivers are in a unique position to share personal insights to shape future directions in gynaecological cancer research, advocate for research funding and educate the next generation of health professionals.
Recognising the importance of the consumer voice, the Australia New Zealand Gynaecological Oncology Group (ANZGOG) sought to develop a Community Engagement Program (CEP) that provides opportunities for people with a lived experience of gynaecological cancer to contribute meaningfully and effect outcomes for gynaecological cancer patients now and into the future.
Methods: ANZGOG undertook a process of discovery regarding best practice in community engagement to define the strategy and framework to provide meaningful opportunities for volunteer contribution. Development of the CEP was informed by extensive consultation with stakeholders, ANZGOG members, community volunteers and organisations with significant experience in consumer partnerships.
Results: Consultation confirmed that ANZGOG’s CEP will provide opportunities for people with a lived experience of gynaecological cancer (n=123) to contribute across three pillars: Education, Advocacy and Research – based upon individual areas of interest, or expertise, by matching volunteers with the pillar most suited to them. It was considered essential that volunteers are provided with training and ongoing support to fulfill their role.
Conclusion: The design of the CEP ensures ANZGOG’s strategies, priorities and activities are informed by, and reflect, the diverse needs of people with a lived experience of gynaecological cancer.
[1] https://www.canceraustralia.gov.au/cancer-types/gynaecological-cancers/statistics
[2] https://www.health.govt.nz/publication/new-cancer-registrations-2019