Introduction
Chemotherapy-induced alopecia is considered one of the most emotional toxicities experienced from cancer treatment. Chemotherapy-induced alopecia impacts self-confidence and self-esteem, increasing the psychosocial strain of cancer. This can stimulate withdrawal from society and lead to decreased quality of life. Scalp cooling therapy is a non-pharmacological supportive care that can be used in conjunction with selected chemotherapy regimens for the prevention of hair loss and hair follicle preservation. Supported by robust evidence of efficacy, published clinical guidelines recommend the use of scalp cooling therapy with various chemotherapeutic agents. However, globally, availability is inconsistent. Studies on the motivators and experiences of patients who choose to use scalp cooling therapy are lacking at present.
Objectives/Aims
The aim of this study was to qualitatively explore the global experiences, perceptions and motivators of patients who are currently or have undertaken scalp cooling therapy or offered scalp cooling therapy.
Description/Methodology
18 semi-structured, in-depth interviews were conducted with cancer patients via Zoom™ and data was analysed using thematic analysis.
Results/Outcomes
Five themes emerged based on participant interviews: support in decision making to undertake scalp cooling therapy; controlling identity; the process of scalp cooling: expectations versus reality; oncology health professional knowledge and attitudes; and recommendations for future patients undertaking scalp cooling therapy and cancer care services. Chemotherapy-induced alopecia was identified as a toxicity frequently underestimated by oncology health professionals. Participants found using scalp cooling therapy increased their quality of life, supporting their efforts to maintain a ‘sense of normality’ whilst undergoing chemotherapy treatment and into survivorship.
Conclusions
Findings of psychological and psychosocial benefits gained from using scalp cooling therapy should encourage facility uptake of clinical guidelines and movement towards global widespread implementation of scalp cooling devices.